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11 highly interdisciplinary partners including established ERIC / ESFRI infrastructures such BBMRI, ECRIN, EIRENE and EBRAINS with unique expertise in conceptualizing and implementing European RIs. The partners will generate a gap analysis to identify what is missing of cohort data and samples, RI tools and services, quality measures, governance models, user needs and the barriers for efficient utilization of these cohorts and RI, including ethical and legal frameworks.

To identify IT technologies and architecture for suitable data stewardship and long-term availability of European RIs, the partners will prepare for a feasibility study for federated data analysis of LMedC. The feasibility study will be based on two examples of use-cases: one stroke case using data from medical health registry data and one case using data from longitudinal population-based studies with different technical, legal, and ethical challenges. To ensure availability of data and samples related to existing and future LMedC studies and their re-use for secondary research, the partners will develop a concept outline including a governance plan and guiding principles for data access policies and data protection policy, whilst considering the FAIR principles and ELSI issues. An overarching RI concept to manage, integrate, and sustain LMedC studies will be developed, including an initial financial and operational plan for the implementation of the new RI outlining new services and access opportunities for the research community.

Co-funded By the EU

Project partners


    EU flag
  • Norges teknisk-naturvitenskapelige universitet

    Norges teknisk-naturvitenskapelige universitet logo
    Norway flag
  • European Clinical Research Infrastructure Network

    European Clinical Research Infrastructure Network logo
    EU flag
  • Fundació Privada per a la Recerca i Docència Sant Joan de Déu

    Fundació Privada per a la Recerca i Docència Sant Joan de Déu logo
    Spain flag
  • Parc Sanitari Sant Joan de Déu

    Parc Sanitari Sant Joan de Déu logo
    Spain flag
  • Academisch Ziekenhuis Groningen

    Academisch Ziekenhuis Groningen logo
    Germany flag
  • Masaryk University

    Masaryk University logo
    Czech Republic flag
  • Qi.Lab.Med Srl. (University of Padova)

    Qi.Lab.Med Srl. (University of Pavia) logo
    Italy flag
  • Fraunhofer-Gesellschaft

    Fraunhofer Gesellschaft Logo
    Germany flag
  • HUS-yhtymä

    HUS-yhtymä logo
    Finland flag
  • International Agency for Research on Cancer

    International Agency for Research on Cancer logo
    France flag

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